Maddie has more than one year in the Children’s Hospital Cardiothoracic Intensive Care Unit at UM spent the CS Mott Children’s Hospital, waiting for a transplant, while the machine keeps them alive. She holds the American record and is approaching the world record for the number of days on the device.
A UM patient, Maddie Shaw recently celebrated her fourth birthday on the same day that she observed its first anniversary of living with a EXCOR Pediatric device, also called a Berlin Heart. She received the device as part an FDA exemption, but more children can now get them at UM and a handful of other centers through a new clinical study. Continue reading “Waiting for a transplant.”